About this job
Employment type: full time
POSITION DESCRIPTION Manager, Membership Development and Programs The Manager, Membership Development and Programs is a key member of the Hemophilia Ontario team, responsible for strengthening membership engagement, expanding outreach to people with inherited bleeding disorders and their families, ensuring member value and supporting the delivery of programs, services, and education across Ontario. The role works closely with members, volunteers, Hemophilia Treatment Centres (HTCs), clinics, health care practitioners, community partners, and stakeholders to identify potential members, reduce barriers to participation, and connect individuals and families with appropriate Hemophilia Ontario supports. The Manager is expected to contribute as a cooperative, positive, and solutions-focused team member, working collaboratively with colleagues and volunteers to advance Hemophilia Ontario’s mission of improving the health and quality of life of people with inherited bleeding disorders. Membership Recruitment & Outreach Membership Recruitment Strategy: Develop and implement a province-wide membership recruitment strategy to identify, engage, and welcome people with inherited bleeding disorders and their families. Grow and expand the HO membership numbers. HTC and Clinic Relationships: Build and maintain positive working relationships with Hemophilia Treatment Centres, clinics, nurses, social workers, physicians, and allied health professionals to support appropriate referrals and awareness of Hemophilia Ontario programs and services. New Member Engagement: Create and oversee a welcoming process for new members, including orientation materials, introductory communications, follow-up contact, and connection to relevant supports. Community Outreach: Plan and deliver outreach activities across Ontario to increase awareness of Hemophilia Ontario among individuals, families, caregivers, and communities affected by inherited bleeding disorders. Membership Data: Maintain accurate membership records, monitor recruitment and engagement trends, and prepare membership updates for planning, reporting, and evaluation purposes. Barriers to Participation: Identify barriers that prevent individuals and families from joining or participating in programs and recommend practical strategies to improve access, inclusion, and engagement. Program Planning & Delivery Program Coordination: Plan, coordinate, execute and evaluate member-focused programs, education sessions, workshops, community days, webinars, and support activities that respond to member needs. Member Support Services: Support members in accessing Hemophilia Ontario services, including information, education, financial assistance processes, and referrals to appropriate community or health care resources. Regional Engagement: Work with regional volunteers, community representatives, and health care partners to support program delivery in communities across Ontario. Education and Resources: Develop and update educational materials, program guides, member information packages, and presentations to support understanding of inherited bleeding disorders and available services. Program Evaluation: Collect participant feedback, assess program effectiveness, and prepare evidence-based recommendations to improve quality, relevance, and impact. Volunteer & Community Partnerships Volunteer Engagement: Recruit, orient, support, and recognize volunteers who contribute to membership outreach, program delivery, peer connection, and community engagement activities. Committee Support: Coordinate volunteer committees or working groups as assigned, including meeting schedules, agendas, minutes, follow-up items, and progress tracking. Community Partnerships: Develop and maintain relationships with community organizations, health charities, social service agencies, and other partners to increase awareness, collaboration, and referral pathways. Inclusive Participation: Promote inclusive, respectful, and accessible participation for members of all ages, backgrounds, regions, and family circumstances. Women’s Program Development Women’s Program Strategy: Develop and implement a dedicated women’s program for women and girls with bleeding disorders, with a focus on addressing their unique health, social, emotional, educational, and support needs. Online Community: Create and support a safe, respectful, and inclusive online community where women and girls with bleeding disorders can connect, share experiences, access reliable information, and support one another. Interactive Learning: Plan and coordinate interactive learning opportunities focused on topics relevant to women and girls with bleeding disorders, including diagnosis, treatment, self-advocacy, mental health, reproductive health, life transitions, and navigating health care systems. Women’s Weekends and Events: Develop and deliver annual women’s weekends, peer support gatherings, workshops, and other events that foster education, connection, leadership, confidence, and community among participants. Health Care and Community Collaboration: Work with HTCs, clinics, health care practitioners, volunteers, and community partners to identify emerging needs, develop appropriate resources, and promote awareness of bleeding disorders among women and girls. Online Education & Member Learning Online Education Strategy: Develop and implement an online education strategy for members, families, caregivers, volunteers, and stakeholders to support ongoing learning and engagement. Medical Updates: Coordinate online educational sessions that keep members informed about new medical enhancements, treatment developments, care practices, research updates, and emerging information related to inherited bleeding disorders. Professional and Personal Development: Plan learning opportunities that support personal development, self-advocacy, leadership, volunteer development, peer support skills, and informed participation in health care decision-maki